Volume 18, Issue 2 (March-April 2019)
Payesh 2019, 18(2): 161-171 |
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Ethics code: IR.MUI.REC.1396.3.725
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Koohkan Aliabadi E, Rajabi G, Yousofian S, Zare- Farashbandi F. Factors Related to Health Information Needs of Families Who Had Children with Cancer . Payesh 2019; 18 (2) :161-171
URL: http://payeshjournal.ir/article-1-1020-en.html
URL: http://payeshjournal.ir/article-1-1020-en.html
1- School of Management and Medical Information Sciences, Isfahan University of Medical Sciences, Isfahan, Iran
2- Faculty of Education and Psychology, Shahid Chamran University of Ahvaz, Ahvaz, Iran
3- Cancer prevention Research Center, Isfahan University of Medical Sciences, Isfahan, Iran
4- Health Information Technology Research Center, Isfahan University of Medical Sciences, Isfahan, Iran
2- Faculty of Education and Psychology, Shahid Chamran University of Ahvaz, Ahvaz, Iran
3- Cancer prevention Research Center, Isfahan University of Medical Sciences, Isfahan, Iran
4- Health Information Technology Research Center, Isfahan University of Medical Sciences, Isfahan, Iran
Abstract: (5572 Views)
Objective (s): The continuous assessment of the parents' information needs and its factors affecting can increase the quality of childcare. The purpose of this study was to determine the factors affecting the information needs of families who had children with cancer.
Methods: This cross-sectional study conducted on the 244 families referring to Isfahan's Seyyed-Al-Shohada Hospital, who had children with cancer. The data was gathered through a researcher-made questionnaire with 48 items in four dimensions: access, presentation, and exchange of related health information; provision of cancer information by the health care provider; health and counseling facilities and services; and social, economic and spiritual supports. The construct validity of the questionnaire was assigned and its reliability through Cronbach's alpha coefficient was 0.96.
Results: The findings showed that the sex of the parent and the child's age were related to the overall score of the health information needs and the second dimension of the four dimensions of these needs (P>0.05). The sex of the parents, their level of education, the duration of diagnosis, the type of cancer, and the presence of a cancer patient in the second-degree family were related to the first dimension. Also the sex of the parents and their level of education, place of residence, income, and child’s age were factors affecting on the third dimension. And sex of the parents and their education, income, and child’s age were related to the fourth dimension of the health information needs of the children's family (P>0.05).
Conclusion: Considering the impact of some individual, contextual, and socio-economic factors on the information needs of the families who had children with cancer, health care providers need to consider these factors to meet these information needs.
Methods: This cross-sectional study conducted on the 244 families referring to Isfahan's Seyyed-Al-Shohada Hospital, who had children with cancer. The data was gathered through a researcher-made questionnaire with 48 items in four dimensions: access, presentation, and exchange of related health information; provision of cancer information by the health care provider; health and counseling facilities and services; and social, economic and spiritual supports. The construct validity of the questionnaire was assigned and its reliability through Cronbach's alpha coefficient was 0.96.
Results: The findings showed that the sex of the parent and the child's age were related to the overall score of the health information needs and the second dimension of the four dimensions of these needs (P>0.05). The sex of the parents, their level of education, the duration of diagnosis, the type of cancer, and the presence of a cancer patient in the second-degree family were related to the first dimension. Also the sex of the parents and their level of education, place of residence, income, and child’s age were factors affecting on the third dimension. And sex of the parents and their education, income, and child’s age were related to the fourth dimension of the health information needs of the children's family (P>0.05).
Conclusion: Considering the impact of some individual, contextual, and socio-economic factors on the information needs of the families who had children with cancer, health care providers need to consider these factors to meet these information needs.
type of study: Descriptive |
Accepted: 2019/04/24 | ePublished ahead of print: 2019/04/27 | Published: 2019/06/9
Accepted: 2019/04/24 | ePublished ahead of print: 2019/04/27 | Published: 2019/06/9
References
1. Riahi A, Hariri N, Nooshinfard F. Health Information Needs of Immigrant Patients with Cancer in Iran. Journal of Modern Medical Information Sciences 2016; 2: 21-30 [Persian]
2. Mousavi M, Pourfeizi A, Dastgiri S. Childhood Cancer in Iran. Journal of Pediatric Hematology Oncology 2010; 32:376-82 [DOI:10.1097/MPH.0b013e3181e003f7]
3. Rahimi S , Fadakar Soghe R, Tabri R, Kazemnezhad Leili E. Related factors with Quality of Life among preschool children with cancer. Journal of Holistic Nursing and Midwifery 2013; 24: 30-9 [Persian]
4. Tabari F, Zaakeri Moghaddam M, Bahrani N, Monjamed Z. Evaluation of Quality of Life in Patients with Newly Diagnosed Cancer. Hayat 2008; 13: 5-12 [Persian]
5. Sanjari M. Child Hospitalization and Parents' Anxiety. Iran Journal of Nursing 2004; 17:41-48 [Persian]
6. Woźniak K, Iżycki D. Cancer: a Family at Risk. Przeglad Menopauzalny 2014; 13: 253-61 [DOI:10.5114/pm.2014.45002]
7. Carey M .L, Clinton-McHarg T, Sanson-Fisher R.W, Shakeshaft A. Development of Cancer Needs Questionnaire for Parents and Carers of Adolescents and Young Adults with Cancer. Support Care Cancer 2012; 20: 991-1010 [DOI:10.1007/s00520-011-1172-2]
8. Matsuyama R.K, Kuhn L A, Molisani A, Wilson-Genderson M. Cancer Patients' Information Needs the First Nine Months after Diagnosis. Patient education and counseling 2013; 90: 96-102 [DOI:10.1016/j.pec.2012.09.009]
9. Shorofi A, JannatiY, Roohi Moghaddam H. The Psychosocial Needs of The Families of The Patients Admitted To Intensive Care Units: A Review of Literature. Clinical Excellence 2014; 3: 46-57 [Persian]
10. Ghazanfari Z, Arab M, Forouzi M, Pouraboli B. Knowledge level and education needs of thalassemic childern's parents of Kerman city. Iranian Journal of Critical Care Nursing 2010; 3: 99-103 [Persian]
11. Hojat M. A survey of the degree of knowledge and experience of the cancer patient's family about pain control. Scientific-Research Journal of Shahed University 2010; 17: 1-11 [Persian]
12. Shahraki Vahed A, Hamedi Shahraki S, Masinaie Nezhad N, Badakhsh M. A survey of the educational needs of the relatives of the patients with cardiovascular diseases. Journal of Jahrom University of Medical Sciences 2011; 9: 41-7 [Persian]
13. Shamsi A, Azizzadeh Forouzi M, Iranmanesh S. Psychosocial risks among parents of children with cancer. Journal of Pediatric Nursing 2016; 2: 44-55 [Persian]
14. Wakefield C.E, Butow P, Fleming C.A.K, Daniel G, Cohn R.J. Family Information Needs at Childhood Cancer Treatment Completion. Pediatric Blood & Cancer 2012; 58: 621-6 [DOI:10.1002/pbc.23316]
15. Riahi A, Hariri N, Nooshinfard F. Immigrants and Information Needs: Health Information Needs of Immigrants admitted to Health care Centers of Medical Sciences Universities in Iran. Journal of Health 2016; 7: 435-45 [Persian] [DOI:10.29252/jnkums.7.3.597]
16. Arshi M, Gholami Jam F, Nazif A, Imani F. The Relationship between Caregiving Burden and Family Function of Children with Cancer. Quarterly Journal of Social work 2016; 4:35-41[Persian]
17. Knijnenburg S. L, Kremer L. C, Bos C.v. d, Braam K. I, Jaspers M. W.M. Health Information Needs of Childhood Cancer Survivors and Their Family. Pediatric Blood & Cancer 2010; 54: 123-7 [DOI:10.1002/pbc.22207]
18. Mohaddesi H, Moshiri Z, Moghaddam Tabrizi F. Study Of Eucationadl Needs of Parents in Caring from Eemophilic Children in West Azarbaijan in 1381. Journal of Urmia Nursing and Midwifery Faculty. 2004; 2: 1-8 [Persian]
19. Jenkins V, Fallowfield L, Saul J. Information Needs of Patients with Cancer: Results from a Large Study in UK Cancer Centres. British Journal of Cancer 2001; 84: 48-51 [DOI:10.1054/bjoc.2000.1573]
20. Borjalilu S, Sharif Z, Sabbagh-Bani-Azad M, Afzali M, KoochakzadehL, AfzaliM.The Information Needs of Parents of Children with Cancer: A Qualitative Study. Journal of Qualitative Research in Health Science 2017; 6: 228-37
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